My past 12 months have been a whirlwind of mommyhood, wifehood, and experimenting with treatments. I started breastfeeding prior to my diagnosis, so I have been limited on the medications that are considered to be "acceptable". I use this term because that's all that ibuprofen and Celebrex are, acceptable. Let's just say there aren't many breastfeeding moms volunteering for drug trials. So who the hell knows how safe something really is?
Admist the chaos of my medical bullllll... my favorite little girl was struggling with sleep. It wasn't typical... Fast forward through many doctors visits for the both of us, plus sleep studies for her and then we came to the diagnosis of moderate obstructive sleep apnea and severe central sleep apnea. The new diagnoses were hers.
Fast forward to a month ago when it all got much worse. We became desperate. We were zombies surviving off of brief naps, caffeine, and baby giggles. I came up with this theory that my high daily doses of NSAIDS may be causing or worsening her condition. There is speculation that nsaids can cause respiratory problems for babies. Yes, she wasn't taking them, but I was. I was taking 800 MG of ibuprofen as often as medically possible. That stopped working, so I began taking the max dose of Celebrex twice daily. What was I supposed to do? My tiny child wakes up sobbing all. night. long. She needs comfort beyond what I know how to give. We've tried everything to wean her.
Unmedicated ankylosing spondylitis is a real b!tch. It's what is best for my daughter right now as I'm currently working on weaning her and trying to get her condition stable. The pain is temporary. I can deal with the agony.
Right now, I'm laying in bed. It's almost 1 AM and I will hopefully be going to bed as soon as I am able to sneak oxygen onto the face of my sleeping daughter for the second time tonight. My lumbar spine is swollen. It feels lumpy and bruised. This is my new reality. I'm making it work by staying as active as possible, taking hot baths daily, and avoiding any strain to my spine.
Two days ago was my first time taking a biologic medication called Enbrel. It's an injection that I'll be giving myself weekly. It will alter the wway my body attacks itself, hopefully lessening the damage being done or at least lessening pain. I need my quality of life back.
Admist the chaos of my medical bullllll... my favorite little girl was struggling with sleep. It wasn't typical... Fast forward through many doctors visits for the both of us, plus sleep studies for her and then we came to the diagnosis of moderate obstructive sleep apnea and severe central sleep apnea. The new diagnoses were hers.
Fast forward to a month ago when it all got much worse. We became desperate. We were zombies surviving off of brief naps, caffeine, and baby giggles. I came up with this theory that my high daily doses of NSAIDS may be causing or worsening her condition. There is speculation that nsaids can cause respiratory problems for babies. Yes, she wasn't taking them, but I was. I was taking 800 MG of ibuprofen as often as medically possible. That stopped working, so I began taking the max dose of Celebrex twice daily. What was I supposed to do? My tiny child wakes up sobbing all. night. long. She needs comfort beyond what I know how to give. We've tried everything to wean her.
Unmedicated ankylosing spondylitis is a real b!tch. It's what is best for my daughter right now as I'm currently working on weaning her and trying to get her condition stable. The pain is temporary. I can deal with the agony.
Right now, I'm laying in bed. It's almost 1 AM and I will hopefully be going to bed as soon as I am able to sneak oxygen onto the face of my sleeping daughter for the second time tonight. My lumbar spine is swollen. It feels lumpy and bruised. This is my new reality. I'm making it work by staying as active as possible, taking hot baths daily, and avoiding any strain to my spine.
Two days ago was my first time taking a biologic medication called Enbrel. It's an injection that I'll be giving myself weekly. It will alter the wway my body attacks itself, hopefully lessening the damage being done or at least lessening pain. I need my quality of life back.
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